Evaluation of Cancer Outcomes Barwon South West Registry

The Evaluation of Cancer Outcomes Barwon South West Registry (ECOBSW Registry) is a regional dataset of diagnosis, clinical pathways, and outcomes for all people diagnosed with cancer in the Barwon South West region.

The registry supplies evidence-based data for cancer service redesign projects.

Data includes stage at diagnosis, first-line treatments, and subsequent outcomes. The dataset provides comprehensive information to inform clinical and population health decision making for all residents of the region. It can be used to:

• identify variations in care and underlying causes
• monitor incidence, recurrence rates, and survival within the BSW region
• monitor patient pathways and identify referral patterns
• support service planning
• support research initiatives to understand and improve cancer care in the region.

ECOBSW  Registry data governance

To maintain privacy, confidentiality and data security, the ECOBSW Registry has a comprehensive governance structure – including a robust data management framework.

Information collected and collated by the ECOBSW Registry is stored in a secure, password-protected database. The data is housed and managed in accordance with the Improving Cancer Outcomes Act 2014 and does not contravene statutes or Health Privacy Principles contained in the Health Records Act 2001.

A Steering Committee provides oversight of the ECOBSW Registry, including:

• developing policies for data access
• responding to quality-of-care issues
• reviewing research and data requests
• protecting the needs and interests of all stakeholders
• overseeing financial responsibilities
• promoting compliance with privacy legislation
• promoting data quality improvement processes
• incorporating consumer perspectives.

ECOBSW clinical indicator program

The ECOBSW Registry allows us to measure and monitor the degree to which healthcare benefits the patient, and how closely that care aligns with evidence-based practice.

Our clinical quality indicator program provides a snapshot of the care administered across the BSW region. Indicators were selected based on common presentations, evidence, importance for safety and quality, and can be analysed using the ECOBSW dataset.

The clinical indicators were developed by an expert working group following an extensive review of Australian and International clinical practice guidelines.