The PICS Regional Outreach and Shared Care Program (ROSCP)
The PICS Regional Outreach and Shared Care Program (ROSCP) supports care as close to home as possible, when it is safe and appropriate to do so.
Approximately 30% of the children and adolescents with cancer treated by The Royal Children’s Hospital (RCH) and Monash Children’s Hospital (MCH) live in regional areas.
Some cancer treatments and supportive care can be delivered across Victoria, without needing to travel to Melbourne. The ROSCP helps to make this happen, when it is safe and appropriate to do so, by:
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- linking treating teams at RCH and MCH with participating health services across Victoria, and coordinating shared care clinics at their regional centres
- providing education and training to improve the skills and knowledge of staff who care for children and adolescents with cancer at regional centres.
Each of the 9 participating regional shared care centres has local nursing staff from their paediatric ward working with ROSCP and providing care for patients in the program. Treatment for childhood cancer remains directed by the oncology team at RCH or MCH.
The shared care model enabled by the ROSCP also supports the PICS Long Term Follow-up Program (LTFP) to provide clinics closer to home for Victorian childhood cancer survivors.
PICS thanks the Sporting Chance Cancer Foundation and the Albury Wodonga Regional Cancer Centre Trust Fund for their contributions in support of the ROSCP.
The benefits of having shared care closer to home
The ROSCP reduces the excess cancer burden on regional Victorians, supports local health services, and most importantly has a positive impact on quality of life for patients and their caregivers.
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- Less disruption and time lost – By accessing care locally, families can reduce the frequency of trips to primary treatment centres in Melbourne. This can mean only taking hours for some common or standard appointments, treatments and procedures, rather than an entire day or even two.
- Reduced costs – From petrol and road tolls to accommodation and unpaid time off work, financial and logistical burdens are reduced when care can be delivered as close to the home as possible.
- Life can be more ‘normal’ – There are more opportunities to continue to go to school and work, maintain social activities and access support networks. This can be key for both patients during their formative years, and their families.
- Coordinated care – With primary and local treatment sites working together with support by ROSCP, parents and carers know that their healthcare teams across the state are kept informed, and have less anxiety and uncertainty in the management of care.
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- Local workforce development – Clinical education provided by ROSCP upskills paediatric nurses and medical staff across the state. The knowledge and skills gained can be used outside of oncology, improving the quality of care more broadly.
- Improved communication and coordination – Supported by ROSCP, teams across the state are kept informed and the admin burden on services is reduced. This gives them more time to focus on treating patients and supporting local families.
- Reduced regional healthcare inequities – By increasing local service capabilities and then supporting better uptake of local services, ROSCP supports Victoria’s regional cancer centres and improves the adoption of and access to quality cancer care across the state.
- Best-practice care improvements delivered at scale, locally – driving implementation of optimal and oncology care pathways.
“For our family, having access to the Regional Outreach and Shared Care Program has allowed less disruption and more normality to our everyday lives. Having appointments closer to home and even nursing care at home, has meant less travelling, less accommodation costs and overall less stress for our whole family. Most importantly, it has meant less time apart for our family and that is what really matters.”
- Parent of a child with cancer
Regional Outreach and Shared Care Program FAQs
Click on the questions below to answer frequently asked questions about your journey with the ROSCP. You can also read the ROSCP brochure for patients, carers, and families for more information.
Your oncologist and/or your nurse consultant will make this decision by taking into consideration:
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- your place of residence
- your child’s diagnosis
- treatment protocols
- end-of-treatment surveillance/follow-up requirements.
To learn more about how to access the program, or find out whether you are eligible, please speak to your child’s treating team.
Read the ROSCP patient care pathway to learn more about the patient journey and an overview of what to expect when you are part of the program.
There are 9 regional centres in Victoria that care for children, adolescents, and young adults with cancer, located in:
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- Albury (Albury Wodonga Health)
- Ballarat (Grampians Health)
- Bendigo (Bendigo Health)
- Frankston (Peninsula Health)
- Geelong (Barwon Health)
- Shepparton (Goulburn Valley Health)
- Traralgon (Latrobe Regional Health)
- Wangaratta (Northeast Health)
- Warrnambool (South West Healthcare).
Each centre offers different levels of shared care services across their catchment area.
Each centre offers different levels of shared care services for paediatric oncology patients in their catchment area. Services can include some or all of:
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- low-complexity chemotherapy
- fever neutropenia care
- blood product support
- central line care
- nasogastric tube care
- pathology collection
- vaccinations
- management of chicken pox exposure
- local telehealth-assisted reviews with a paediatric oncologist and local paediatrician.
Outreach clinics take place at some regional centres throughout the year. These are run by one of the treating oncologists and oncology nurse consultants.
Centres may also provide broader supportive care services, such as in the management of acute pain, acute nausea and vomiting, or mucositis.
For more details, read the ROSCP brochure for patients, families, and carers, or speak to your child’s treating team.
Regional families often need to travel long distances to attend appointments over several years. Telehealth appointments may be available for families living in regional areas or interstate, whose children are medically suitable. This is a video link between the RCH or MCH oncologist, the patient and parent/carer, and the patient’s GP or paediatrician.
To find out whether you are eligible, please speak to your child’s treating team.
I don’t live near the RCH or MCH. When should I call my local hospital?
If your child is unwell and you are seeking advice, please call your team in the children’s cancer centre first, on the number you were provided.
However, reasons to call your local hospital may include:
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- to organise a tour for your child to meet the staff in the department to orientate to the ward and feel more comfortable with the surroundings (optional)
- after calling your oncology treating team, when advised to alert your regional health service that you need to present to the emergency department for review.
| Regional shared care centre | Paediatric ward phone number |
|---|---|
| Albury Wodonga Health (Albury) | (02) 6058 4404 |
| Grampians Health (Ballarat) | (03) 5320 4253 |
| Bendigo Health (Bendigo) | (03) 5454 7802 |
| Peninsula Health (Frankston) | (03) 9784 7460 |
| Barwon Health (Geelong) | (03) 4215 1661 |
| Goulburn Valley Health (Shepparton) | (03) 5832 2660 |
| Latrobe Regional Hospital (Traralgon) | (03) 5173 8145 |
| Northeast Health (Wangaratta) | (03) 5722 5341 |
| South West Healthcare (Warrnambool) | (03) 5564 4280 |
ROSCP education
As part of our education opportunities for health professionals, ROSCP provides face-to-face learning and training sessions to staff who care for children and adolescents with cancer at regional centres.
This education helps the regional centres to deliver the services and support that allow paediatric cancer patients to access care closer to home, where appropriate.
Covering a range of topics to improve knowledge and practical skills, these sessions are available for a mix of medical, nursing and allied health staff. Many learnings can also be applied in other areas of care as well as treating cancer, meaning that ROSCP education provides additional benefits by skilling-up our workforce to improve paediatric care more widely.
We thank the Sporting Chance Cancer Foundation for their funding to support ROSCP education opportunities across regional Victoria.